Thursday, December 30, 2010

a year in review...



in so many ways i feel that this year has flown by and yet in other ways i feel that we've lived several years all just inside 2010. we're heading into the new decade...that one just hit me the other day. yes, duh, but wow...



this past new year we knew that we'd be embarking on a new beginning. we had accepted the position in pa and jj was preparing to start the long process of working up here and traveling home to nc on weekends. after six months of the balancing act that was running a business, being a stay at home mom, putting the house on the market to sell, and preparing for a move it was a nice breather to travel for the summer.



thank you dc, raleigh, orlando, sarasota, st. augustine, charlotte, and pittsburgh for putting up with us this summer. our transitions here have been abundant and we're all really sick of our apartment/town home but we have hope that when we are all really settled in our new home that this will too start to feel like "home".



our adoption is well under way. we've hurdled two significant steps. our home study here in pittsburgh is complete and we are filed with immigration. we are in a wait and watch period while paperwork is processed, validated, etc. and the next step will be to receive our referral. we will know soon who we will be adopting and within a few months we will be able to go visit him.



this has been a year of losses and gains, transitions and routines, and all in all - change. we certainly threw the deck up in the air and decided to see where our hand would fall. it's now cold outside, there is snow on the ground, and we really want a garage! come spring we hope to watch our new little world come to life outside our warm and happy home.



in the mean time, let's say ciao 2010 - and bonjour 2011!

Wednesday, December 29, 2010

more dolls!

UPDATE on this post - after this image was posted yesterday on facebook 65 of these dolls were allocated for delivery to st. joseph's children in port au prince, haiti. they will be there january 11. i'm so excited!

100 more dolls are ready for haiti! please let me know if you are planning a trip to haiti. i would love to send some with you for your trip. hundreds of thousands of children in haiti lack the most basic necessities in life. i'm hoping that placing a doll in the hands of a child with nothing will provide a portal for a new world with the opportunity to play and imagine. please help me if you can!


Saturday, December 25, 2010

in a time of happiness and thanks...

i'm drawn to thinking of those who will not be celebrating with family this holiday season. i wanted to take a moment to express my thanks for many years of love and kindness shown to me by both of my grandmothers. pansy delia nelson and greta/gretchen helen haefeli, known by all as midge. known to me as granny good witch. they were my last two living grandparents who departed this year. delia, my mom's mom, was an english lady. she loved my grandfather deeply. she lived many years without him, and i hope they are happy together again. we lost grandma nelson over easter weekend. midge, my dad's mom, was an incredible skier and trailblazer in the industry. she was also a kick-ass old lady who liked to slumber party with me and watch horror movies like silence of the lambs. she taught me how to drink coffee and kick up my clog heels at the white horse inn during visits to her little farm house. we lost her in october. i hope that i can carry their legacy with in my soul and that when we are together again they have saved me a good seat at the table.

i love you both.



for georgie aldrich, you were a beautiful and vibrant young man taken too early. perhaps you are meant to shine brightly from above to light the path. may georgie's family find peace and strength in this time of loss.




for eva markvoort, the words you've left for all to learn from are truly inspiring. your legacy is seared in my mind. your sacrifice is devastating, however your spirit rages on forever. your attitude and your zest for life are amazing and reading your story has changed me. i hope that you have your own wings now and that you are never breathless again.

please read about her:

www.65redroses.livejournal.com
http://www.65redroses.com/?p=760
http://www.c21media.net//news/detail.asp?area=1&article=58349

it is very exciting to see that her documentary, a part of hot docs, will be airing in the states in the spring of 2011. be on the look out for it. it hit oprah's list. it should be getting lots of attention soon.





thank you for your contribution in my life and the lives of many others. you are missed but you will never be forgotten. for those who lost their lives and succumbed to their battles this year, may you all be at peace.

Friday, December 24, 2010

fa la la la la la la la la.....

our kids are enjoying our little fake tree this year. we'll have the amazing smell of a real one again next year. we decided to get into the holiday spirit by going to the holiday light show. after two hours in the car, we got a glimpse of holiday wonderment...

with our documents submitted for the adoption, a new house in the works, and a winter wonderland outside our windows we wish with warmth and thankfulness in our hearts for all of our friends and family to have a very merry christmas and a happy holiday season!





Thursday, December 23, 2010

a holiday hello from our adoption and home study agencies

we would like to extend a special thank you for all of the encouragement we've been given from our friends and family and total strangers through out this process! we are very happy to announce that all of our documentation is on it's way to the agency and immigration. the next part of the process is the referral stage. we will let everyone know when we receive it and of course, post a photo of him. we are very much looking forward to seeing him soon. Hopefully february or march! ;-)

thank you to lilly, claire, Laura, Jana, & suzy for your professional help and support in getting us to this point. we're very happy to work with you all going forward.

holiday hello's from children of all nations (our adoption agency) and families united (our home study agency):



Tuesday, December 21, 2010



i'm a big fan of the "save the ta ta's" movement. whether i keep my boobs because of avon, susan g. komen, duke, mcgee women's hospital, or georgetown's advancing medical techniques i think that they're all wonderful and appreciate deeply that they are blazing pathways toward a cure. to find a cure we have to raise awareness.

my friend cathy did the 3 day this year. i know it was a wonderful experience for her.



i joined the army of women a few years ago. it's a fantastic organization! check into it at: www.armyofwomen.org



now there's a movement to stop domestic violence. it looks pretty cool!





http://www.avonfoundation.org/af-news-1.html#1

swell dolls...

two swell dolls for two swell kids!

Thursday, December 16, 2010

at least it's not like this here in pittsburgh...



the bridge in question...

how can someone accidentally fall off the middle of this bridge after walking miles in the dark?






Wednesday, December 15, 2010

it wasn't an accident...

for those who have been there, this was no accident.

Body found in Colorado identified as ex-Rhode Islander
01:00 AM EST on Wednesday, December 15, 2010
By Thomas J. Morgan and Donita Naylor


The police in Aspen, Colo., confirmed Tuesday that a body found under a bridge Monday is that of 28-year-old George Aldrich Jr., a Rhode Island man who has been missing since late November.

The Pitkin County Coroner’s office said Tuesday night that Aldrich’s death appeared to be accidental.

“The cause of death was multiple trauma blunt force injury secondary to a fall from the Maroon Creek Bridge,” according to a statement from the coroner’s office, forwarded by the Aspen police. “The manner of death was accidental. Toxicology is pending.” the report said.

The police say Aldrich’s body was found Monday by off-duty members of Mountain Rescue Aspen who were keeping their promise to the Aldrich family to keep looking for him.

Aldrich had lived in Cranston and Newport before moving to Colorado to work as a Snowmass ski-lift operator.

His body was found 107 feet below the bridge, near where he was last seen on Nov. 27, when he got off at the wrong bus stop after meeting friends at a bar.

The Aspen news website Realaspen.com posted a statement from Brooke Aldrich-Glasgow, Aldrich’s sister: “We have confirmation that Georgie is at peace. His earthly body was found by the Maroon Creek Bridge in Truscott. An area that had been searched by the best Search and Rescue teams, dogs and our family.

“My Dad and brother are already on their way to Aspen to bring Georgie home. We ask for your continued prayers while we figure out what happened to Georgie.”

Aldrich’s other sister, Brianna, said the family would have no further comment.

A report by Brent Gardner-Smith on aspendailynews.com quoted Assistant Police Chief Bill Linn as saying that the scene suggested the death was an accident, “however, we investigate any situation like this as though it is a homicide.” Doug Paley, president of Mountain Rescue Aspen, said finding the body was a fluke.

Police Chief Richard Pryor said the body was in “a slight depression in the ground, [and] was mostly likely snow-covered for most of the last two weeks, which clearly makes it very difficult for searchers to locate.”

Pryor said Aldrich’s gray plaid jacket, pulled up over his head, helped camouflage the body. “It was very difficult to see his body from a distance of about six feet. While the area was searched multiple times, I firmly believe we did all we could under the circumstances, and that we were actually very fortunate to discover him.”

Law-enforcement officers were led to the site and still couldn’t see the body until Mountain Rescue personnel gave them increasingly specific directions.

The chief expressed what was on the minds of many: “To have his life end like this is an absolute tragedy, and I think everyone in the community feels that way.”

Aldrich is a 2001 graduate of Providence’s La Salle Academy, where his father, George Aldrich Sr., is the director of admissions.

La Salle issued the following statement Tuesday afternoon: “It is with great sadness that we learned of the discovery of the body of George Aldrich. … As a student at La Salle Academy, Georgie touched our minds and hearts in a significant way. The entire La Salle Academy community extends its deepest condolences to the Aldrich family at this difficult time.

“We are also deeply appreciative of all those in our community, and throughout the country, who have been a support to the Aldrich family over these two weeks. While the outcome was one none of us wished to consider, the love and compassion extended to the Aldrich family should give all of us great comfort in the goodness of our extended community, especially during this Christmas season. Please continue to pray for the Aldrich family as they mourn the loss of their son and brother.”

People were leaving condolences on the Facebook page Find George Aldrich Tuesday. Elaine and Brian LaFleur of New Bedford posted a photo of themselves with Aldrich taken last spring.

George was their favorite guide at Segway of Newport, where they took tours whenever they could.

They last saw him in on a beautiful day in October, just days before he left for Colorado. “George told us he had a new job; he was really looking forward to it,” Elaine LaFleur said Tuesday. “He was a snowboarder and skier, and he was looking for new adventures.

“We hated to see him leave,” she said. “He was great on those tours.”

She said he was outgoing, had a great personality, and “You could tell he had ambition. I was a former teacher. He just impressed me as a really great kid.”

Tuesday, December 14, 2010

brooke wrote this about her brother...

‎"An angel in the book of life wrote down my brothers birth. And whispered as she closed the book, too beautiful for earth." Please do not be sad for my family. I was blessed to have Georgie as my little brother for 28 years. He left this earth in the place he called paradise. Please celebrate his life and your own.

what an incredibly beautiful sentiment! rest peacefully georgie.




this was posted for georgie and i think it's beautiful...

‎"Do not stand at my grave and weep,
I am not there, I do not sleep.
I am in a thousand winds that blow,
I am the softly falling snow.
I am the gentle showers of rain,
I am the fields of ripening grain.
I am in the morning hush,
I am in the graceful rush
Of beautiful birds in circling flight,
I am the starshine of the night.
I am in the flowers that bloom,
I am in a quiet room.
I am in the birds that sing,
I am in each lovely thing.
Do not stand at my grave and cry,
I am not there. I do not die."
— Mary Elizabeth Frye

losing georgie



George Aldrich - UPDATE - georgie's body has been found. the family is gathering and planning his services. this horrible end of a very sad story is just the beginning as we don't know what happened to him, and we still have to bring the person or people responsible for his death to justice.

the following article was written about his disappearance:

http://www.facebook.com/pages/Find-George-Aldrich/171688642854493#!/pages/Find-George-Aldrich/171688642854493?v=info

George Aldrich, 28, as photographed on Nov 27th, the night he disappeared.

Georgie was last seen exiting bus 555 at the Truscott stop in Aspen. He spoke briefly to a woman who said he realized he was at the wrong stop when the shuttle left. She assumed he would wait for the next shuttle bus or attempt to hitch hike home. That was the last time anyone saw our brother. Bloodhounds were able to track his scent twenty minutes down the road to the Aspen Inn and shuttle stop.

Georgie is 5 feet 9 inches tall, weighing 140 pounds, with shoulder length wavy brown hair. He was wearing a plaid winter coat with a fur hood attached. My Dad, 2 brothers, husband and friend are in Aspen searching for him.

A special 'thank you' to the dedicated and hard working volunteers of Mountain Rescue Aspen.



Mountain Rescue Aspen
www.mountainrescueaspen.org
Mountain Rescue-Aspen was incorporated in 1965 as a non-profit organization and is one of the oldest search and rescue teams in the state. We are accredited through the Rocky Mountain Region of the Mountain Rescue Association and work as a volunteer arm of the Pitkin County Sheriffs office.

http://www.mountainrescueaspen.org/

aspen collectively mourned last night with the news of his body being found. the following photos were taken of the evening sky in both downtown aspen and just near the bridge where his body was found. it is interesting that there was such a beautiful sunset followed by a meteor shower. perhaps this was georgie's way of saying he's at peace. the ribbon featured here was designed by the kids at lasalle academy in rhode island where georgie's dad is an admissions counselor.

georgeie - i'm sorry we couldn't find you in time. now we will honor your life and let your soul rest.





Tuesday, December 7, 2010

dolly donations update!


dolly donations is now making an impact in romania!

http://dollydonations.blogspot.com/2010/12/your-doll-drives-from-romania-to.html

resilience heads to san diego, california sunday, december 12!

I wanted to let you know that Resilience, the collection of dresses that comprised my Thesis at George Mason University will be on display this Sunday, December 12 in San Diego at a fundraising event for Take Root.

On display in addition to Resilience will be a poem I wrote as well as a signature necklace and earring set hand made with repurposed metals, stone and ribbon that is available in the silent auction.

Members of Take Root are displaying a variety of works as well as videos and a training program called Kid Gloves. Please come out and support this amazing group and cause! If you are in the San Diego area this weekend and would like more information on the event, please let me know and I will give you more details.

You can learn more about Take Root at:
www.TakeRoot.Org

Or here on facebook at:
http://www.facebook.com/l/3bad6NC3oQaXbqZA4BM80K6GhhA;www.causes.com/takeroot

More information on Resilience can be found on my website at:
http://www.facebook.com/l/3bad6P0fexq0BPiwLXizrVYaY5w;www.wildrootcreations.com

mini ginger bread houses suck!

we thought, "oh cool! mini ginger bread houses! we can make a village!" then reality set it when they were nearly impossible to make! so the photos should indicate a little bit of frustration!


Sunday, December 5, 2010

building a house is a process...

in addition to the long wait and appointments galore, building a custom house house also means this:

Saturday, December 4, 2010

help find georgie!



george aldrich is the brother of a friend of mine. he has been missing for a week. he was last seen in aspen. he is loved. please look at his face and keep him in your thoughts.


http://www.facebook.com/pages/Find-George-Aldrich/171688642854493?v=wall


http://www.youtube.com/watch?v=1cRufiwcrl4


Family of missing man are 
in Aspen, searching for a sign
by Brent Gardner-Smith, Mountain Business Journal Columnist

Friday, December 3, 2010

The family of George Aldrich, who has been missing without atrace since Saturday, decided Thursday to offer a $5,000 award for anyinformation leading to his whereabouts.

“Even just a lead would be so nice,” said his father, GeorgeAldrich Sr.. “There is somebody in this town that knows where he went. Somebodyhas to know.”

Aldrich, 28, was last seen at Eric’s bar in Aspen onSaturday, Nov. 27 between 10:30 and 11:00 p.m. He was with a group of casualfriends, none of whom remember him saying good-bye or leaving the bar.

Law enforcement and search and rescue personnel from theupper valley have been working on the case since Monday, when Aldrich did notshow up for his job as a lift operator at the Snowmass ski area.

Aspen police are asking local property managers and ownersto check vacant or little-used properties for anything that might be amiss orunusual. Police also are eager to watch any recent surveillance video fromdowntown Aspen that might show Aldrich, even in passing.

Aldrich lives in employee housing at Club Commons inSnowmass Village. He didn’t have a car and was using Roaring ForkTransportation Authority buses to get around the valley. Much of the searchefforts thus far have revolved around the thought that perhaps somethinghappened to him as he tried to get home from Aspen Saturday night.

The elder Aldrich and the missing man’s older brother, SeanAldrich, flew into Aspen Tuesday from Rhode Island in an effort to find“Georgie,” who moved to the valley from Cranston, R.I. on Nov. 1 to become alift operator, snowboard for the winter, and eventually try to find a local jobin marketing. Aldrich Jr. wanted to make a life here, they said.

The Aldriches have spent their time in Aspen conferring withlocal investigators, re-tracing Aldrich Jr.’s steps on Saturday night, talkingwith his recently-made friends who were with him at Eric’s, and watchingsurveillance video from local establishments.

Aldrich Sr. also did an interview with a television stationfrom Denver on Thursday, in an effort to spread the word about his son.

“They asked what would be the best thing and the best thingis that he pops back in town and says ‘Hey, I’ve been in Reno. I left on aprivate jet with this beautiful 40-year-old woman and you know, sorry,’”Aldrich said.

But he doubts that is what has happened.

“I’ve got to find him, whether he’s hurt or not hurt,” hesaid, his voice breaking and eyes watering. “That’s it. We’ll be here until wefind him.”

“He’s a good kid,” Sean Aldrich said quietly. “Hopefully wefind him.”

Both Aldriches were highly complimentary of the extensiveefforts by local officials to find their missing son and brother. They saidAspen Skiing Co. officials have been very gracious, and that, in fact, everyonethey’ve met in Aspen and Snowmass has been warm and generous.

But they are at a complete loss as to what has happened toGeorge Aldrich, Jr.

“It’s been such a dead-end, it’s mind-boggling,” his fathersaid. “I was very, very, very upbeat when I first got here, thinking maybe hejust missed a day of work. But now we have no idea.”

They have since learned that George Aldrich, Jr. worked atthe Snowmass ski area on Saturday and then took a 6 p.m. bus to Aspen to go tothe live concert at the base of Aspen Mountain.

Aldrich was with his roommate from Club Commons that night,as the two had become good friends since meeting a month ago. But the roommate,who had to work the next day, caught a bus back to Snowmass about 8:30 or 9:00p.m. and left Aldrich at Eric’s with a loose group of his newly-made friendsfrom Snowmass, whom the Aldrich family also has spoken with.

“They said he had a couple of beers and a shot,” SeanAldrich said. “He doesn’t drink a lot.”

One of the friends took a photo of Aldrich about 10:30 p.m.at Eric’s, which police have distributed.

“After that specific time, nobody really knows where hewent,” George Aldrich, Sr. said. “Did he hop in a car? Did he go up themountain a little? Did he hop a wrong bus toward Glenwood? Did he go toSnowmass? We’re just trying to identify where he went.”

Sean and George Aldrich also said all of George Jr.’spossessions are still in his room at Club Commons, including his new snowboardsand boots.

“He was really excited about being out here,” Sean Aldrichsaid. “He loved snowboarding.”

George Aldrich, Jr. has a degree in marketing from Johnsonand Wales University and once spent a year studying at the school’s Denvercampus, which is when he first spent time in Aspen and the Rocky Mountains.

“He loved Denver, he loved Aspen, he loved the mountains,”George Aldrich Sr. said. “He sent us pictures of the top of the mountain wherethey hiked up. He told his roommate he loved it. All the girls that were outwith him that night, they just really enjoyed him and said he was gentleman ...he was pulling out all his East Coast moves, I guess. He’s a smooth operator.He’s a great kid. He’s extremely intelligent. And he’s a very responsible guy.”

Any information about Aldrich can be phoned in to the AspenPolice Department at (970) 920-5310.

bgs@aspendailynews.com

http://www.realaspen.com/article/343/APD-Video-footage-shows-missing-man-George-Aldrich-board-exit-bus

http://www.aolnews.com/nation/article/police-seek-leads-in-colorado-man-george-aldrichs-disappearance/19742664

http://www.snowmasssun.com/article/20101130/FRONTPAGE/101139998/1064&ParentProfile=1039

http://www.9news.com/news/article.aspx?storyid=167870&catid=339

Saturday, November 27, 2010

why so tired, dear?

so the struggle with my disease rages on, as i have persistent headaches, a constant need for sleep, and pause for breath. with chronic anemia knocking at my door, it would seem that my body has advanced to a new stage of dysfunction and it warrants more intervention from those aiding in my attempts at balance! sure this is annoying but as soon as i want to feel frustrated about my new weekly schedule, i am reminded that i am here and i am able to fight. the team i work with and my body - we will prevail, never fear, as i will never wilt. i have a fire that burns fiercely inside of me. it is flickering ever so slightly right now, but it is begging to dance, to sing, to play, to learn, to create, to mother, to grow and grow and it will after i get some rest and re-juice. that fire will be stoked and come blazing back to it's intended force.

however, for now it means that i have to head back to the mcgee cancer center for weekly iron infusions and probably go under the knife again next year. the good news behind all of this is that it will be elective this time! hooray! is there a time when you celebrate intentional pain from surgery? in this case, yes! as when it is done i will likely not have a stricture any longer. i will no longer feel the stretching pain of my daily feasts passing through my body causing bleeding from a sore spot in my core, i will hopefully not need the iron as often and i will have more energy. all of this will be helpful as adding a third child to our lives will only increase my need for additional energy, and we are all so very excited about this child coming!

another plus is that i really do enjoy the women at mcgee. it is such a sad place but a place filled with hope and inspiration. the women chat about their experience losing their hair and the options facing them - will they have a prosthesis or will they have reconstructive surgery? i often sit in my little chair with a warm blanket draped over my cold body and wonder if this is all preparation for a day when i might receive the news that i have to start thinking about the same options and make my own decisions. there is a high rate of cancer in our family and i've always wondered if i were to get it, what kind would it be? as of now, i can say that i'd lop off the girls, remove the flower that produced my lovely and amazing kids and start the process of beginning my life reconstructed. i'd have the most amazing boobs money could buy! and i'd have a new lease on life.

in the mean time, i try to remember that i have this one disease to deal with for now, and managing that is enough. i find inspiration all around me. my wonderful husband, my amazing kids, the women at mcgee, my lovely friend charis, my parents, my grandparents who have passed, and from my new friend eva who has taught me that from her words written long before i read them that i can sustain and learn from a friendship that has been created by a bond unknown to her but appreciated by me who is still here reading her words. so today i raise my coffee cup to eva! i grab a love handle and shake my cellulite for eva! i revel in my cheesecake and pumpkin pie little body and use every bit of the energy that has been injected into my veins for eva!

Wednesday, November 24, 2010

leo

cuddle and slumber, breath in warmth,
every beat i hear of your little heart.
softly holding my face so close,
we nearly touch nose to nose.
your sweet little body tucked in safely,
patiently waiting until you can play with me.
i give in to your little fight,
and decide to say goodbye to night.
we stumble through our morning,
but eventually get going.
our day together has begun,
and to another beautiful day my son.

Saturday, November 20, 2010

pondering my romance (again)...

every morning my husband leaves before the sun is shining, before the world has woken from slumber. but before he leaves i get a kiss on the forehead.

and this is what i think:


Moist soft touch,
When you’re gone it’s cold and you’re missed,
I want to leave it so I cup my hand to hold on to it,
As it dries I reminisce,
Oh how I love your kiss.

Wednesday, November 17, 2010

thank you - thank you - thank you!!!

after several months of creating many dolls, the woman who birthed the dolly donation drive that i'm infatuated with has tipped her hat! she is such an inspiration and an amazingly talented artist and i'm overwhelmingly happy that she has entrusted me to pursue her idea and share it with my corner of the world. so thank YOU sarah hanson for your idea and for your support! BIG BIG HUGS!!!

what a lovely compliment it was to receive this post:

http://dollydonations.blogspot.com/2010/11/your-doll-drives-jenns-250-dolls-for.html

Sunday, November 14, 2010

it's that time again!

if you're shuckin', you can get creative and repurpose your waste by making corn husk dolls. google it or watch one of these videos:

http://www.google.com/#hl=en&expIds=17050,25657,26486,26488,26492,26498,26504,27028,27404,27601&sugexp=ldymls&xhr=t&q=corn+husk+dolls&cp=0&pf=p&sclient=psy&tbs=vid:1&aq=0&aqi=&aql=&oq=&gs_rfai=&pbx=1&fp=85d5b3a157de46fd

a level yard is taking shape!

now we need grass! badly!!! i'm hoping the seed takes well in the spring. i really don't want all this dirt dragged into my house, and our two crappy dogs are really good at that! i'm also looking forward to designing the landscape. i've had my eye on some cherry blossoms and dogwoods for a while. the house faces north, so anything in the front yard will have to be hardy for the cold shade. the other three sides will have a bit more flexibility. any ideas?


Friday, November 12, 2010

tiffany mission sconces...

outdoor lighting - every girl wants tiffany!

copy and paste this link into your browser to view them:

http://www.vaxcellightinglights.com/lighting/4-10-859-0-175001/Vaxcel-Lighting_Mission---9--Outdoor-Pendant-OD14696ST.htm

Saturday, November 6, 2010

Thursday, November 4, 2010

falling with persephone...

rain and clouds and crisp wet air. a gentle breeze blows my hair. soft rolling wisp of earthly flight, brewing winter is my plight. sweetly dancing falling leaves,but oh how i miss the soft buzz of the honey bee's. a crackle, a pop, and a mysterious swivel, a cabin's fire shouldn't fizzle. with warmth tucked away for a long cold slumber, perhaps i'll curl up and hibernate until next summer.

Tuesday, November 2, 2010

diseases pondered by the diseased...

this amazing young woman was a ferocious warrior. she was a visionary. she was diseased. cystic fibrosis. it's like the crohn's of the lungs. i'm reading every word she wrote, and i'm learning something or many somethings along the way. it's inspiring and sadly relatable in many ways. chronic illness bears unforgiving and familiar traits. i can't believe she is gone. i'm thankful that her words are still here and i hope that they always will be. i would say that everyone should read this, but i'm not sure everyone will feel what i feel so i'll just suggest that there is a lot to be understood about the focal point of a young woman slowly losing her life yet trying desperately to put on a smile and dig her nails into each and every day.

i'm on the 65 red roses journey. will you join me?

http://65redroses.livejournal.com/